Marv, dont worry you are ok!!! I completely understand your posts and the reason behind them. This sort of thing isnt always black and white. I know 100% that you are not mentioning something here to profit from it or to encourage others to try it where it could be harmful or even deadly in certain situations with some patients. If there is to be further discussion of those types of things OCF prefers to have those conversations taken off the open online forum. Posting here is public so anyone from anywhere can read things at any time 24/7/365. Our site gets thousands of views every single day from people from all over the world. These people usually dont bother registering or setting up an account, they just come here to read and learn. Where this could turn into a problem is if someone is taking advice that was given to a member who has already shared their medical situation so we have a bit of a background and can help them with pretty specific info. We see it here all the time where newer members want to compare their situation to someone else who they feel has the same situation as them. Too often, without much info or understanding that its not possible to have an equal comparison. For example ... if you take 20 people who are all say 44 years old, 5'11" and weigh 180 lbs, male, HPV+, Caucasian brown hair/blue eyes, have all had the same vaccinations, all live within a 25 mile radius in NY, NY, they all have the same tumor size, stage and location, are all given the same treatment plan and all start treatment within a few days of each other, they all even have the same B+ blood type and medical history, number of children, middle class white collar office jobs, same daily routines, activity levels, same type of sports participation and they have the same type of diet, etc. On paper those 20 people appear to be nearly identical but they are still not an equal comparison as every single person is a unique individual and will react in their own unique way to medication, medical procedures, and recovery. Those 20 people have different DNA with different hereditary traits and their own different resistance to diseases. Sorry about my long explanation about the "everybodys different" principle! What is visible on our online public forum could be easily misunderstood and taken out of context by someone who is not that fluent in English or how our forum operates. They could also be desperately searching for help and in their frantic quest to be well again, not think things thru completely and are grasping at straws when trying to find similar situations which may be harmful to them. Medical things are never as cut and dry as they appear and no 2 patients are ever really the same with the same reactions.

Clinical trials are perfectly fine to discuss. Please make sure you ask the people running it if you are allowed to discuss it on an open public forum or our message boar. There are often all kinds of fine print and legalities when it comes to trials where you may be required to sign contracts vowing to keep everything confidential. Often those types of things will have patients who get the real medicine and others who are given a placebo but the patient is never told which they receive. I cant remember the website but there is one that lists all current trials. Some trials are only available at certain treatment facilities while others go by country or some will have several countries participating. I hope you are able to get into a trial which is showing promise and it works its magic to eliminate the cancer for good.

If you ever have questions about the forum just ask. I check in frequently and am always happy to help all of our members. Have a great weekend!!!