MarvB,

I’m sorry for your treatment delay, and it is an issue at some places! I think they’re trying to keep it a certain time period, but don’t want to quote the exact time, maybe 30 days. I think I’ve waited longer! There are other factors involved, and hopefully you’re kept in that time frame.

Pain is often a sign of the cancer or surgery, even treatment, and disrupts your appetite. I did my best to alleviate this, besides telling my doctor, taking opioid pain meds, otc oral care products, brushing with a soft toothbrush, eating soft foods or just drinking nutritional drinks. Usually treatment alleviated the pain, but as you did, tell the doctor, and staff, everything.

I hope you have help at home coping with everything? Besides coming here, there are local support groups and professional counseling to help deal with this cancer. I can say you’re not alone here!

I hope this helps, and good luck!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs