Wanted to leave an update. My latest scan shows that the tumors in the lungs are growing again. One of them looks like it is growing pretty fast. I have been on Erbitux weekly since November. I am not sure if that is a normal amount of time that it keeps the tumors at bay or not. My oncologist is going to have me switch to immunotherapy now. I should be starting Opdivo either next week or the week after. As this is one of the only ones that is FDA approved for this type of cancer at the moment, I hoping it works on me and that it works well for a good amount of time. If not then I hope I can get on a trial and keep this from killing me too quickly. I know the most probable outcome as so far there doesn't seem to be anyone who has put this in remission once it gets to this point, but there is a very slight chance that with the new drugs coming out in the near future I can squeak through. I feel like I am in Vegas putting all my life savings on red and spinning the wheel.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health