someguyjeff,

I am not great at offering advice, but if I can I will say that you need to keep believing. Erbitux will help until you can get on a trial and things are changing every day. I am hoping to start a new trial tomorrow that didn't even exist when I was first diagnosed with Mets. I won't lie, the odds are not high, but anything is possible as you have seen here.

As for Erbitux - lotion, lotion, lotion! Bathe in it because that dry skin is a small but annoying side effect. Keep working on getting on trials if you can and if you want to - they offer people like us hope! I totally understand what you are gong through, I really do, and I would hate to see you resign yourself to defeat while there is still a chance, especially while you can maintain a good QoL.

Just one man's opinion,

The Hellion


SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!

**update** passed away 3/26/16 RIP, you will be missed by many