so i met with my oncologist today. He wants to start me on once a week Erbitux next week while we wait and try to find any trials. he will only give me worst case scenario or 3-6 month survival and get your affairs in order speech. I am glad he is honest but I would like to hear some not to worst case also. has anyone had any luck with Erbitux? he said he would add another drug to it if it looked like it would respond. otherwise he also said he has access to opdivo and keytruda and if nothing else works he could try those. I was thinking I would have maybe a year or two. I guess it seems maybe I am hoping for too much?


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health