I do not post much on here but I have used the knowledge I have gained by reading here greatly. It is without much happiness to say that I am now in the spread to lungs crowd. Its been a year since my first diagnoses, about 7 months past treatment. The treatment has left me with extreme trismus and dry mouth along with limited neck movement and many other things that don't matter much anymore. I do not know yet as to my prognosis except that basically no one has survived this spread to the lungs. I do not know if I will post much but i will read from time to time. I just want to thank everyone for what they have shared and don't worry too much about me. If you pray, then pray for my young (9 and 11) daughters. They are strong but they will need the prayers and all they can get after I am gone. Bless you all and thank you all again.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health