Thank you for your encouragement. I will hope and pray for having good success with trial drugs and/or any others they may try me on. I would not know what to do with myself if I could actually get back to NED. I am going in on Monday to have my ENT surgeon use ultrasound guided FNA to look around in my neck and cheek for anything that he could drain out or determine if there is recurrences there. I have had bad problems with infections in the jaw and neck and there is a lot of pain and swelling in that area now. I will ask him about the lung resections as well, although I know that would fall under a pulmonary Dr., but maybe he has some insight since he has studied my scans.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health