thank you everyone. Tomorrow I start my first round of Erbitux. Brian, I contacted city of hope and am still in the process of getting an appointment with an oncologist. I spoke to one of their specialists and they agreed that Erbitux is the gold standard and starting with that is what they would do also. I am under the impression that if Erbitux does not work then I would have the go ahead to start opdivo and/or keytruda. I am really hoping for some good news soon. I would like to be one of few that actually beat mets to the lungs. If not, I would really like to get around 5-10 healthy years before I go down.

On a personal note, I am in escrow to buy my family a home that would be perfect for my wife to raise the kids in and now the lender is asking for 20,000 more to close escrow with. Some friends of mine have started a gofundme account and its just nice to see how many people are supporting me out there. We are no where near close to what we need but it is nice to have support.

If anyone has any experience with Erbitux and could help me out with some guidelines as far as symptoms etc. that would be great. Thank you all.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health