OP Supporting Member (50+ posts) Joined: Dec 2014 Posts: 55 | Thank you, so far its been 4-5 days and no side effects to speak of yet. They plan to infuse me every Thursday for the next few weeks. I am hoping to get switched over to the immunotherapy stuff like opivido and such pretty soon and see how those do. I just do not want to waste too much time on stuff that isn't as cure orientated as others. With my current health being pretty good I do not really want to sink into bad health before they really start to try and "fix" me. I know there is a pretty much 100% chance of not surviving mets to the lungs. I would love to break that mold, but more realistically, I just want to get close to 10 healthy years. Call me crazy. ha
Jeff - 41yrs old/previous smoker SCC buccal mucosa/jaw bone Stage 4 Nov '14 Partial Mandibulectomy with fibula flap, neck dissection Jan '15 Rads x35 Cisplatin x2 Apr '15 PET/CT concerning area Follow up MRI no mass. July '15 PET/CT 11mm nodule in right lower lobe the lung. Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules Nov '15 erbitux Mar '16 CT tumors are growing again, waiting on next step June'16 hospice had 3 Opdivo infusions trying to regain health
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