Brian,
I have a referral in to City of Hope to get a second opinion. I am hoping that comes through quickly. I am all for fighting this head on and using all avenues I have available to me. I am not past even going to Cuba to see what kind of treatment I could get there as i have heard they have some cures for lung cancer which doesn't fully apply to me but could help. I will give your office a call soon. It would be a blessing to talk to you and get some advice. I am wondering if anyone has had any success with surgical resection of some or all the pulmonary tumors?? Today was the first day i actually had chest pain and shortness of breath. It could have just been stress but I am either too optimistic or just ill informed because I can't see myself going downhill anytime soon as I feel the best I have ever since my surgery this time last year.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health