PaulB,

I appreciate you posting that guideline. It is less the frequency of ENT followups and more the PET scans I am worried about. It seems to me that most of the folks here on OCF got at least two scans after the TX ended, some more. The guidelines leave the doctors plenty of space to work within. It just seems that most doctors choose more scanning (and more ENt scopes as well) that my (and Fishmanpa's) RO. And yes, it does make me extremely uneasy.

Fishmanpa, I will post here what I find out from the RO. I certainly plan to press the matter. I really want to know what is a good reason NOT to have a PET scan, when most patients elsewhere are given at least two.


36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound