I am counting days, only one treatment left on Monday! If it weren't for Thanksgiving break, I would have already been done.

I have seen my RO briefly on Thursday, and will see him again on Monday. While we will discuss this more on Monday, it appears that they do not want to give me any followup PET scans! At all! I have expressed my strong dislike of this and he said well, "maybe" before he had to leave; but it seems that I am up for a huge battle on Monday. I have read on Ngk's thread PaulB's response that there are no clear guidelines on the frequency of both ENT follow-ups and PET scans. Still, it seems to me that most people get one at 3 months and one around 9/12 months as well. Not sure about later in the first 5 years.

What would be good reasons not to give one a followup PET scan? I know it is not the radioactivity dose, those are low and one person can have quite a few PET scans. I have probably acquired much higher dose from daily CT scans before the rads anyway (that is how Tomo machines work). I simply can not come up with a good reason. How can one be declared NED with scans, based on what?

I do tend to worry a lot and while we all always worry about the cancer coming back, I am pretty certain this fear will be huge for me without PET scans. Especially since I was not given chemo, and I am already worrying about microscopic cancer cells that may have gotten out of neck into, say, lungs.

As you can see, I am very upset about this and prepared to really advocate my wishes on Monday. I sometimes get the feeling that they are treating me as a light case. In case the outcome of the conversation is not as I want, who else can prescribe me a PET scan? Can my family doctor do that? I know my ENT/surgeon can, but he and my RO work closely together so i am sure they share their opinions.