Hi all dads on day 9 of radiation tomorro x having trouble with his feeds they just keep coming up his throat into his mouth the dietician coming in the morning x he's not putting any weight on they said he's not doing them right he putting them in to fast but they never shown him how to do it. So he just syringes them in like you would medicine they want him to use the drip one in the night to try get calories in him x he's still struggling with saliva there's so much in his mouth he can't speak with it all they've give him patches for neck to lessen it but it's doing nothing x I rang his McMillan nurse last Tuesday still not had a reply I've lost a lot or faith in McMillan which is sad to say as I'm sure others have good experiences with them but so far we've had no help whatsoever x just gotta get through this radiation now then hopefully can work on speech and if he's ever going to swallow again fingers crossed xx hope your all ok and doing well xx


Father 60 years old
Diagnoised oc jan 15
Peg fitted 27/2/15
Full tongue glossectomy reconstruc surge ,
Lymph nodes and glands out 5/3/15
Rt 14/5/2015