Hi, just a little update -- now finished day 7 treatment and so far so good -- the Reglan seems to have pretty much solved the nausea problem as it stops Barry getting that "bloated" feeling which, exacerbated by the peg, was causing a lingering queasiness. Today no problem. I am still amazed as to how well he's doing with the chemo-- that was yesterday, so he didn't get amiphostine, just the carboplatin -- came home all bouncy (his daughter took him in) and ate a huge supper. Our neighbor had baked him a fresh peach pie and he really enjoyed that -- he is trying to eat all the stuff he likes now as he knows he will be losing his taste fairly soon and won't be enjoying food, even if he is able to continue eaing some by mouth.

We have spoken to various others getting radiation at Hopkins for HNC and it seems the intensity and duration of the mouth problems vary a lot -- many people don't do anything until problems develop whereas Barry's been doing stuff all along (aloe in mouth, l-glutamine and salt/soda rinses, as well as our little Manuka honey "experiment"). However neither of us is naive so we are just waiting for that shoe to drop and enjoying the "calm before the storm" so to speak...

Barry's kids bought him a portable DVD player (a belated birthday present) to use while he waits for chemo, which can be quite a while -- also his daughter brought over the humidifier we bought her for Xmas as she says he needs it more...

Would be interested in others' experiences as to when they atrted to get mouth sores, thick mucous/phlegm and loss of taste...

Cheers,
Gail