Hello Kristen S!!

I've had some issues w/ my PEG tube as well but it seems to be doing okay for the moment. And since it's doing okay, I'm making sure that I really take care of it. Around Week 5 or 6 of radiation, it started to hurt under the skin. I couldn't even sit up straight w/o it aching. The surgeon that put it in at my hemiglossectomy appointment is about 45-50 mins away from my home. I did go down and have the nurses look at it and they were clueless!! They thought that maybe it was infected and I should be on antibiotics. Or maybe they should change it out for another one. But at that time, I hadn't even finished rads and didn't want anymore treatment. I ended up seeing a GI specialist at the hospital where I did my radiation treatments (about 30 mins away from home) and he said it was fine. He ended trimming the length of my tube. For some odd reason, the discomfort went away on its own. I too have had the granulation issue. The surgeon that did the hemiglossectomy uses a silver nitrate gel. His nurse just rubbed it around the entry and the tissue sloughed off. My granulation came back again but then disappeared. It's starting to come back a third time but I'm just keeping an eye on it. I'm telling myself that my tummy wants the PEG tube out of there!! Apparently the granulation is a sign of healing.
I never had anybody tell me to be a couch potato w/ the PEG. Holy moly! I've been doing housework, gardening, yoga (simple stretches!), walking, laundry, etc.

Sorry to hear about your shoulder surgery! As my Mom would say, "if it's not snakes, it's alligators!"

First stripe black belt??!!! Awesome!!!


Kristen S.
Stage 3 SCC Surgery 2/18
35 radiation treatments-completed 6/18