Hi sorry not been on had a really busy week x been for dads follow up appointment not very good news he's been drinking bits of water but they told him not to as it's dangerous as it's probably going in his lungs they won't give him a swallow assessment till about 3 more months but he said there's not much hope of him swallowing again :(( the surgeon said its very unlikely as he's had full tongue removed :(( xx dad also struggling with the saliva in his mouth there's so much of it that if he opens his mouth it falls out so he still doesn't talk x they said that will get better when radiation starts on Tuesday , we've had no support off anyone the McMillan nurse has never been dads once I go round every day and sometimes it's only me he sees , dreading the radiation as they said his face will swell even more it's going to be a long six weeks ,then also afterwards for another 6 good note though he's put bit of weight on as he's upped his peg feeds needs to gain 2 stone really as he's lost 4 having bit of trouble with it repeating on him and coming up his throat but he's stopped taking his ant acid meds because he read the side effects ;/ but he will have to start taking them again x feels his throat dry and he needs a drink but doc says it's in his head. But he does need to drink but isn't allowed x I really hope one day he will swallow I'm praying for a miracle x also said the new tongue will shrink slightly when they start radiation as he feels it's to big x so much going on at moment just want ta year to pass by so he can get a bit of life back feel so sorry for him I dream about it and every time I eat I feel guilty I don't even like having a drink at his house :(( xx hope everyone doing ok xxx