Supporting Member (50+ posts) Joined: Sep 2014 Posts: 87 Likes: 2 | I also had the bad breath. My tongue had an ulceration that started to really open up in between the time when I first noticed something was wrong, until my glossectomy. By the time I went into surgery, it was as if my tongue was missing a piece the size of, well, imagine laying a piece of paper over a quarter and let 1/4 of that quarter stick out from under the paper. It was quite shocking.
Two more weeks to go. I hope things don't get much worse for him before that time. One thing that helped me somewhat, was rinsing my mouth with the water/salt or water/baking soda solution. OCF recommends both in the same solution, but my doctors didn't say to mix them, so I just cycled between salt or baking soda. Not sure of the merits of each option, so I just did what my doctors told me to do.
Dx 2014Jan29 (42 yr old otherwise fit nonsmoker) SCC tongue stage III T3N0M0 subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital RAD 25 zaps 2014May5-2014Jun9 Back to work, paddling & hiking shortly afterwards
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