"OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | I'm sorry I don't know enough to be certain about it but the waiting time seems wrong in the circumstances here. I've had two big surgeries and both times I've had to wait about as long as you but I wasn't in any great pain and nothing indicated the tumours were getting bigger. I didn't feel unwell. If I had noticed the tumour getting bigger or felt sick, I would have wanted treatment much sooner. I might not have received it any earlier but I think even I, timid as I am, would have gone crying to my GP or would have rung the surgeon's nurse.
Could the pain and growth be ulceration rather than tumour increase?? Could the drop in your partner's health be because of anxiety?
If the tumour is growing fast and he is losing condition significantly couldn't someone do something about this? Could the surgeon or one of her staff see him again? Do the medical people know how sick he is? (I guess they do if he is being prescribed painkillers.)
Your doctor sounds great but I hate to see the two of you having to wait so long. It would be nice to know if the tumour was actually growing or if it was an irritation, ulceration or infection in that area of the tongue.
I wish you both well
Maureen
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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