Colleen, based on where your husband is on his treatment I would suspect he is not wanting to have any cans of anything. The role you are in and especially just after treatment is the toughest role, in my opinion. I've been on both sides. It takes a lot of determination and perseverance to keep pushing while you see the patient falling so short of what the doctors all say is the minimum requirement. It will help facilitate healing if we all just listen to them but we don't. He is so fortunate to have you by his side, cracking that whip, if I may, with nothing but love surrounding him! Come here to vent and keep pushing. As soon as he hits that start pushing protein shakes or something healthy with calories to keep the swallow working so things don't get much more complicated.

This was the roughest patch for me for sure. Hang in there it will get better!

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023