Thank you all for your input and it is nice to have someone who really understands the magnitude of this pain for the patient and for the cg. It's been so hard for him as always the upbeat,can handle anything,don't need help from anybody kinda guy. He has always been the helper for others.
Its hard with no communication to know where
he is in this, on the bad days he seems so defeated and it breaks my heart. On the good days,there will be a sl bounce in his step in the morning and a smile for me. Which when he turns makes me fall apart.good at disguising when we are together, not so good otherwise, still having my meltdowns.I just hate this and hate what it has done to him and the pain he is living with just kills me as there is nothing I can do to make it better. I am relieved we are going tomorrow for GT. at least he will get some needed hydration and start getting some nutrients! It's so hard to see such a big guy waste away in front of your eyes in such a short period of time. The pain of watching your loved one deal with this is just unbearable.