Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I was on TPN feedings for almost 4 months after treatment along with 1-3 bags of fluids per day. I was consuming over 4,000 calories a day for months with no weight gain and then the floodgates opened. I gained 11 one week and 50 in a month. If he is managed by a doctor and they are still doing labs regularly, they should guide you in the right direction. In cancer world there is one main number they look at for nutrition, albumin. My mother had normal levels at 50lbs a week before she died.
Have you considered having your husband talk to a cancer psychiatrist? They deal with so many cancer related issues that they may help him understand the importance as well as the impact on you. Best wishes.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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