Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Colleen, like you said in your signature line, you are indeed in the home stretch, but it is also the time when most caregivers would feel worn out both emotionally and physically. I remember when we were at the stage that you are in now, I kept getting the thought that I couldn't do what I was doing for much longer. It was hard for me not to be able to have real conversations with my husband -- he just did not have the desire to talk because he was so tired and all his energy was going into dealing with the pain and the discomfort. I found the loneliness difficult because most people could not really understand the toughness of the treatment and so it made sharing whatever anxieties or fears I had well-nigh impossible. It is hard to believe now, but it does get better. For the time being, give yourself permission to feel upset. Come and vent on the forum. We all understand what you are going through.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. |