 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Colleen, the 50 lb weight loss does not sound good at this juncture. Is there a dietitian, a doctor or a nurse case manager who can talk to your husband about the importance of taking in enough supplement everyday? This way, it is doctor's orders to the patient and not you nagging him some more. It can be really frustrating when as the caregiver, we feel our efforts to help the patient are being obstructed by the very person himself/herself. Can he understand that yes while he is the patient and it is his body, whatever decision he makes has a huge impact on your emotional well-being and your future as well? Can you talk to him about these things when you catch him in a more receptive mood?
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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