| Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I know of some people that are on long term Erbitux for a year for palliative care, and don't know of any about any maximum allowed chemo, but most use trial based therapies, may switch to another to avoid developing a resistance or when no improvement is seen. Some targeted therapies need to be long term in the palliative setting, like 6 months to a year for benefit, some chemos are given in cycles, then stopped, and restarted again. I had Erbitux with radiation, for 6 weeks, but that was for curative intent. The first week is a loading dose, based in your weight, about 470mg for me, along with an infusion of Benadryl, a Tylenol, Hydration. After that were weekly infusions around 250 mg. The first infusion they monitor you closely since a small percentage have a severe allergic reaction, heart failure from it. The worst part of Erbitux is the rash, which can be severe, and the itching, skin dryness drove me crazy. They will give you antibiotics once the rash appears, and the best to use they say is Minocycline. I had 50mg capsules 3x a day. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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Oral Cancer is back, now more visible in her face
| Ina | 05-11-2013 11:27 PM |
Re: Oral Cancer is back, now more visible in her face
| saxicola | 05-12-2013 11:03 AM |
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| ChristineB | 05-12-2013 11:43 AM |
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| davidcpa | 05-12-2013 01:18 PM |
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| Ina | 05-12-2013 08:52 PM |
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| Cheryld | 05-13-2013 03:24 AM |
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| davidcpa | 05-13-2013 12:36 PM |
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| Ina | 05-14-2013 02:53 AM |
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| davidcpa | 05-14-2013 12:13 PM |
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| ChristineB | 05-14-2013 12:31 PM |
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| PaulB | 07-02-2013 09:30 PM |
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| donfoo | 07-04-2013 12:57 AM |
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| Cheryld | 05-14-2013 03:45 PM |
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| Ina | 05-14-2013 03:51 PM |
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| ChristineB | 05-14-2013 05:30 PM |
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| Ina | 05-14-2013 09:33 PM |
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| Cheryld | 05-15-2013 02:29 AM |
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| Ina | 05-15-2013 03:55 AM |
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| davidcpa | 05-15-2013 01:09 PM |
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| Ina | 05-30-2013 03:11 AM |
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| Ina | 05-16-2013 01:40 AM |
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| davidcpa | 05-16-2013 07:53 PM |
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| Ina | 05-16-2013 11:23 PM |
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| Cheryld | 05-17-2013 03:18 AM |
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| Ina | 05-17-2013 12:31 PM |
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| ChristineB | 05-17-2013 12:53 PM |
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| Ina | 05-17-2013 01:01 PM |
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| ChristineB | 05-17-2013 01:34 PM |
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| gmcraft | 05-17-2013 02:25 PM |
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| Ina | 05-17-2013 03:22 PM |
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| Ina | 05-17-2013 03:24 PM |
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| ChristineB | 05-17-2013 05:27 PM |
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| Ina | 05-18-2013 03:00 PM |
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| tamvonk | 05-18-2013 10:56 PM |
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| Ina | 05-19-2013 03:46 AM |
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| PaulB | 05-19-2013 02:16 PM |
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| Ina | 05-19-2013 02:34 PM |
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| ChristineB | 05-19-2013 05:25 PM |
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| Ina | 05-21-2013 02:45 PM |
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| Bart | 05-23-2013 09:27 PM |
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| Ina | 05-24-2013 02:56 AM |
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| PaulB | 05-24-2013 12:26 PM |
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| Ina | 05-24-2013 12:59 PM |
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| PaulB | 05-24-2013 02:32 PM |
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| Ina | 05-24-2013 06:15 PM |
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| Maria | 05-24-2013 02:37 PM |
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| Ina | 05-24-2013 06:06 PM |
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| PaulB | 05-24-2013 07:44 PM |
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| klo | 05-25-2013 09:17 PM |
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| PaulB | 05-25-2013 10:50 PM |
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| Cheryld | 05-28-2013 03:48 PM |
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| davidcpa | 05-30-2013 01:09 PM |
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| Ina | 06-01-2013 04:25 AM |
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| ChristineB | 06-01-2013 11:08 AM |
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| PaulB | 06-01-2013 12:28 PM |
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| Ina | 06-04-2013 04:16 PM |
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| Cheryld | 06-04-2013 04:45 PM |
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| PaulB | 06-04-2013 06:03 PM |
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| Ina | 06-07-2013 07:23 PM |
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| PaulB | 06-07-2013 07:44 PM |
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| ChristineB | 06-07-2013 09:27 PM |
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| Maria | 06-07-2013 10:10 PM |
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| davidcpa | 06-10-2013 01:49 PM |
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| Ina | 06-10-2013 02:22 PM |
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| Cheryld | 06-10-2013 11:55 PM |
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| Ina | 06-11-2013 03:21 PM |
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| davidcpa | 06-12-2013 12:27 PM |
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| PaulB | 06-12-2013 12:44 PM |
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| Susan2992 | 06-12-2013 02:17 PM |
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| Cheryld | 06-12-2013 02:58 PM |
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| Ina | 06-12-2013 03:49 PM |
Re: Oral Cancer is back, now more visible in her face
| donfoo | 06-13-2013 04:52 AM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 06-14-2013 12:52 PM |
Re: Oral Cancer is back, now more visible in her face
| ChristineB | 06-14-2013 02:29 PM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 06-15-2013 02:14 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 06-26-2013 05:37 PM |
Re: Oral Cancer is back, now more visible in her face
| PaulB | 06-26-2013 05:38 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-01-2013 06:06 PM |
Re: Oral Cancer is back, now more visible in her face
| davidcpa | 07-01-2013 06:49 PM |
Re: Oral Cancer is back, now more visible in her face
| PaulB | 07-01-2013 07:24 PM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 07-02-2013 02:16 PM |
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| PaulB | 07-02-2013 03:34 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-02-2013 07:55 PM |
Re: Oral Cancer is back, now more visible in her face
| davidcpa | 07-02-2013 09:20 PM |
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| tamvonk | 07-02-2013 11:34 PM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 07-04-2013 03:19 PM |
Re: Oral Cancer is back, now more visible in her face
| PaulB | 07-05-2013 12:30 AM |
Re: Oral Cancer is back, now more visible in her face
| donfoo | 07-05-2013 03:58 PM |
Re: Oral Cancer is back, now more visible in her face
| davidcpa | 07-05-2013 07:21 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-10-2013 08:17 PM |
Re: Oral Cancer is back, now more visible in her face
| ChristineB | 07-11-2013 01:16 PM |
Re: Oral Cancer is back, now more visible in her face
| davidcpa | 07-11-2013 02:05 PM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 07-11-2013 11:07 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-12-2013 07:42 PM |
Re: Oral Cancer is back, now more visible in her face
| PaulB | 07-12-2013 09:42 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-25-2013 01:03 AM |
Re: Oral Cancer is back, now more visible in her face
| Uptown | 07-25-2013 01:28 AM |
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| ChristineB | 07-25-2013 02:33 AM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 07-25-2013 03:47 AM |
Re: Oral Cancer is back, now more visible in her face
| donfoo | 07-25-2013 04:19 AM |
Re: Oral Cancer is back, now more visible in her face
| davidcpa | 07-25-2013 01:08 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-26-2013 12:46 PM |
Re: Oral Cancer is back, now more visible in her face
| davidcpa | 07-26-2013 01:03 PM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 07-26-2013 02:04 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-26-2013 02:11 PM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 07-27-2013 03:17 AM |
Re: Oral Cancer is back, now more visible in her face
| Mamacita | 07-27-2013 04:34 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-28-2013 01:12 AM |
Re: Oral Cancer is back, now more visible in her face
| davidcpa | 07-28-2013 11:45 AM |
Re: Oral Cancer is back, now more visible in her face
| ChristineB | 07-28-2013 12:07 PM |
Re: Oral Cancer is back, now more visible in her face
| PaulB | 07-28-2013 09:05 PM |
Re: Oral Cancer is back, now more visible in her face
| ChristineB | 07-29-2013 01:08 AM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-29-2013 02:10 AM |
Re: Oral Cancer is back, now more visible in her face
| Susan2992 | 07-29-2013 02:35 AM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-29-2013 02:47 AM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 07-29-2013 02:14 PM |
Re: Oral Cancer is back, now more visible in her face
| donfoo | 07-29-2013 04:13 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 07-29-2013 06:24 PM |
Re: Oral Cancer is back, now more visible in her face
| donfoo | 07-29-2013 06:50 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 08-20-2013 12:33 AM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 08-20-2013 02:36 AM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 08-23-2013 12:33 PM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 08-23-2013 03:33 PM |
Re: Oral Cancer is back, now more visible in her face
| ZendaT | 08-23-2013 05:51 PM |
Re: Oral Cancer is back, now more visible in her face
| JamesD | 08-25-2013 05:33 PM |
Re: Oral Cancer is back, now more visible in her face
| Ina | 08-26-2013 07:35 PM |
Re: Oral Cancer is back, now more visible in her face
| Cheryld | 08-26-2013 11:17 PM |
Re: Oral Cancer is back, now more visible in her face
| davidcpa | 08-27-2013 12:51 PM | |
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