Hi Jay,
We are now 1 year out and I can tell you that I have just recently not thought about recurrence on a daily basis. It is the thing we all fear most, whether the patient or the caregiver.
The end of treatment is also a strange sensation because you go from the hub bub of surviving and knowing you are DOING something daily to...what? Waiting, worrying and just trying to get some normalcy back to your life.
You asked how we handled it...I can tell you that here it has been focusing on the kids and making their lives as normal as can be after last year. This past summer we tried to do lots of fun things to make up for the previous summer that they spent cooped up in the house because we were gone so much. They were awesome about it and always had a smile on their faces throughout the whole ordeal, as well as maintaining GPA'S of over 95 at the end of the school year!!!
I guess I'm just saying to focus on the great things, of which you have, and just be there for each other, which you have proven you are doing by your obvious care!!! It's the new normal and we have all either lived it or are living it. We're in it together. Thank goodness for this site!!
Blessings,
Kathy
PS...thank you for your updates! You are in our familys daily prayers too!!