Emily,

My brother was treated at MD Anderson at about the same time you were. He was told the same thing about PET scans. They only do CT's with him. His wife is a bit concerned about that and is thinking of pushing for a PET.

I think this is also being driven because of my situation. I had requested a PET on my one year anniversary and was denied. They felt I was doing just fine. What they didn't know was that I had a tumor deep in my neck that they could not feel. A CT would have picked it up eventually but my doc's were sure they had nailed the cancer. That was at my local hospital in Grand Rapids, Mi. which was associated with the CCC at U of M.

I moved over to U of M to treat my recurrence.

Keep in mind that PET scan are very expensive ($6,000) so hospitals are reluctant to order one unless some physical symptom warrants one. Mostly they do CT's