Emily, we just went through this with my husband. He completed treatment on August 31st, recently had CT scan, got the results last week (all clear). There was some discussion about whether he would get a post tx PET. It is standard of care at University of Chicago. The tumor board weighed the fact that my husband had a heavy burden of tumor, lots of nodal involvement vs. his outstanding first CT results...decided he should be offered the PET. That said, we were told by the med onc that if we had pushed back, they would not have insisted, that it was a tough call. We have decided to opt for the PET, which will happen in mid-December. We are concerned about the extra radiation, but at this point, seems like a drop in the bucket vs peace of mind.


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED