Hi Jay, I don't know what to say other than you really do have to take it one day at a time. It does get easier, but it takes awhile. Charm is right about the PET. I'm sure you're aware of the strong possibility of false positives. I hope you are anyway. Our first PET came back with a hot spot freaking everyone out, but after an MRI it turned out to be only inflammation. A few days of major stress. Our next PET was clear though. We are due next month again, but are going to request an MRI as they are more accurate the first time around. Hang in there. Love the song Charm quoted. Stay focused on God. Play Praise music daily. Find your favorite scriptures and jot them down and put them on the bathroom mirror and anywhere else you look several times a day. Maybe by Hunter's changing table. Cover your hearts and minds with Faith!! Blessings, Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14
