Well, another week down and we are now 5 weeks post tx.

I really don't know whether or not I should continue to write in this post, as we are technical in after treatment and don't know how relevant the information I am posting here has on others who are currently going through treatment. Just want to keep everything in one place so that others who might want to read through can see the full story as time has past but if need be, I am happy to create a new thread if required.

Today, we had our meeting with our RO & Dietician at our Cancer Treatment hospital for the very last time as Jen was discharged due to the fact that the RO believed that her recovery from her treatment was well on track, and that ongoing check-ups should now go back to our ENT doctors moving forward.

Our first PET / CT scan was also scheduled for the 19th of March which is a date that has started to bring a little bit of anxiety to both myself & Jen. The fact that we know that the cancer was fairly advanced with negative prognosis factors such as ECS really does play with your mind and I guess the countdown starts from now until that date to know for sure we have beaten this thing through and through.

Jen continues to search for her taste buds but is getting a lot more adventurous with her food intake trying anything and everything just to see if there is any taste. Currently, we are able to taste lettuce, milk, cheese, eggs, chicken, certain breads, fish all at about 15% of the normal level but I am sure that list and percentage will increase as the ulcers on her original tongue subside and heals. To everyone's amazement, Jen is not suffering from severe dry mouth, and her saliva function is almost back to normal. Inside the mouth, there is a small 'lump' which is scar tissue forming along with water 'blisters' that come and go, but none of it seems to be of too much concern as per the doctors visual scope that was done today.

It felt good knowing that there was one less hospital to visit, but at the same time there was this sense of void that came with knowing that there was one less set of eyes to watch over Jen from now onwards. I really don't know why it scares me to think that we are slowly getting back to a normal routine as I would have thought it would have made me a lot more happier.. Perhaps overcoming this anxiety & fear is the next challenge in this fight against Cancer and I am curious to know how others have dealt & continue to deal with this...

I know that faith has got us this far and I am grateful for it but we are all only human and as I have more time to think about what we have gone through over the past 5 months, the more questions I come up with that linger in my head...

Jen,Jay & Hunter