Thanks everyone for their well wishes & sorry it's taken a bit of time to post. Cannot believe it has been already 1 week post-tx and this time last week was the very last day of treatment.
Unfortunately, the past week hit us hard (as expected) with the thick mucous playing it's part along with a very sore throat & neck which means we are still using the Nasal Gastric tube for all of Jen's nutritions. Furthermore, the small c started to do it's bit as well and all this has resulted in fatigue, nausea and overall feeling pretty bad due to the lack of sleep.
Medication wise, still on 30mg MS Contin + Paracetamol for breakthrough pain and using the magic mouthwash + baking powder to counter the thick saliva & sore throat. Have taken out the Oxycontin due to the problems we were facing with small 'c' and have added some medication to counter this also.
However, it looks like the worst is over and hopefully things will start turning around over the next week or so. Having the baby around full time is a huge boost plus we have just had my parents arrive for 6 weeks during the festive season to help us out in and around the house.
First follow-up meetings with our ENT doctor & RO next week and very eager to see what they have to say. Praying hard it will be mostly positive news and I will write another update next week for you all.
God bless and I hope everyone has a wonderful lead in to Christmas & the New Year.
Kindest Regards Jay, Jen & Hunter
6/8/12: Wife 33y/o with no risk dx with Stage IVa SCC L of Tongue(T4aN2bM0) 3/9/12: Induced birth @ 36 weeks - Baby Hunter! 11/9/12: OP - 3/4 Partial Gloss, Radical ND & Tongue Rec. 24/10/12: 33xRad + 7xChemo 7/12/12: Tx complete 21/3/13 & 21/6/13: NED 24/7/13: SCC in Lungs - OP: Lobectomy (VATS) 29/1/14 passed away