I wondered about that David. Kevin has now lost 40 pounds and has been eating quite a bit. He had lost 36 lbs at the end of tx. We went to the docs today just to have a spot on his tongue checked for infection and he had lost 4 more pounds. I was really surprised. He was a bit overweight to start with and now looks great, (not the diet plan I would recommend however!), but I wouldn't want him to continue to lose. Why do you think you continue to lose? Did increasing calories help. Sounds like it didn't with what you said about fattening foods. Also, how long did the mucositis hang on? Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14