How did the day go? It would seem like those would be withdrawal symptoms. It really is a roller coaster ride, isn't it? You just never know from one day to the next. We went to the docs on Monday to have the sore on Kev's tongue checked. That's really the only place he is having pain now. They did a culture on it but said they think it's normal mucositis and will heal in time. He ate a hamburger patty tonight with ketchup. First shot at a tomato based product. It went great!! He leaves for work in Alaska in 4 weeks and 3 days, so really needs to be able to eat a variety of foods. He works on the Arctic Slope. They work,sleep and eat right there with everything confined to a camp. I'm a bit of a basket case because they are all confined in this huge camp that is all enclosed and no outside air coming in considering it's 30-40 below zero most of the winter. Really praying he will stay healthy!! He usually works 21 days straight, 12 hour days. This hitch he will only go for 14. ONLY 14 after 6 months of hell. UGH!!
Talk to you soon!!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14