We saw the Dr yesterday and he doubled the patch so up to 50 mg, he also gave him an rx for straight lydocane. When he is not swallowing he feels terrific and looks like he has never had a sick day in his life. Even with the swallow, he got through 1/2 bottle of carnation before it started burning so bad he had to stop. Still no water. The doctor is trying to avoid a feeding tube at this late stage. Going to look at boost or other alternatives that have higher concentrates. He will be given extra hydration tomorrow is his counts are up and they are able to do his last Chemo. If they can't do the Chemo I am going to demand the hydration. Waiting to blink for this nightmare to be over, asking him to eat or drink is starting to frustrate him and I know he is not mad at me but in pain and mad at the situation. Thanks as always for all of your help.


Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!