Charm, thanks for the laugh! I admit that I am not charming alot too. My patience level has dropped dramatically. Some days are better than others. I will admit that a lot of people LOOK at me but don't say anything. My friends and family have all been very supportive and amazed at well I have done through all this. It has helped that I have a WONDERFUL friend who has gone through cancer herself and knows a lot of the things I have gone through. Hers was different and in a different place but there are a lot of the same feelings.

Christine, you keep on swimming. I flat out asked about that and was told there is nothing wrong with swimming. The only thing is that some discharge will happen but it is safe to do in a pool. It was even ok to go in a hot tub and I have done that a couple times. It felt really good. Swimming is a great way to exercise when you can't do much. Some of the community pools are warmer and I find a little more comfortable to swim in than a cold pool.

There have been times where I wish people would ask me what happened to me and lately some people have as I drink with a syringe so I look different waling around with a syringe. If people would ask it would being a whole lot more visibility to this disease. My mom and I were on a place the the people sitting across the isle from us were a smoker and a chewer. My mom really wanted to say something but was not able to. I guess she thought that it would be intruding.

I have a three year old nephew and he had his third birthday this weekend. All his little friends were there and I got a lot of looks at first but after that they just went on and did their thing. My nephew knows that I am a different but he rolls with it and loves me just the same. I think sometimes acting like a child is not always a bad thing.

Sorry if I rambled to much. I guess it stuck me! I hope and will pray that it gets better for you and I agree that both you and your husband deserve the right to do whatever you want!!! And if anyone says anything tell them it's your life and you will live it to the fullest. If he gets tired and has to spend a day or two recovering it OK. You only get one life and if this thing has probably taught a lot of us that life is short and you only get one. Do things while you can!