What does it take before people see you as a survivor and not a cancer patient? Steve is now 17 months cancer free and still people seem to look at him like he has cancer. He HAD cancer. How can you make people understand this. We are finally at a point in our life where we are starting to look to the future a little bit. We want to go home finally and I'd give anything in the world to take Steve back to the place where he smiles a smile I haven't seen in a long time. Everything we seem to plan lately all I ever hear is negative talk about Steve being sick. Argh I just feel like screaming sometimes. What does it take to get people to understand the word SURVIVOR. Yes the cancer could come back but maybe it won't. What are we meant to do? Stop our life and sit here and wait for it? I don't think so.

Some people seem to think it's only a matter of time until the cancer comes back and takes him. How can you think like that. People beat cancer all of the time and I for one, will never give up the possibility of it being gone for good. How do you educate people so they know that having cancer or having had cancer does not mean the end. Negative comments are not what we need. Positive support for our dreams are very much welcome. All I ever seem to hear lately is "Steve can't do that". Steve has earnt the right to do anything he wants to do and he has earnt the right to live his life in the way that makes him the happiest. And so have I.

Sorry but need to vent and I know this place is the only place in the world where people I care about will ever understand. Do other people have these issues or is it just me? Do people ever stop looking at you as a cancer patient and finally see what a survivor you are? I'm just thankful that this negative stuff is never said in front of Steve and only to me but it's so very hard to take sometimes. How do you nicely (without upsetting anyone) let people know that they are not helping the situation?


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.