Thankyou so much everyone. It's so nice to know I have people to talk to that really get it. I think with people who don't have first hand experience with OC they will never understand. They fear it (as we do) but are uneducated about it. We on the other hand have to learn about it, which also teaches us that people do survive this horrible disease.

After watching every detail of what Steve went through and seeing how hard treatment was and recovery still is I know he's a survivor. As is everyone on this forum. It's tough, the toughest thing I've ever had to go through in my life and that's as a carer. For the person battling this disease everyday I can't begin to imagine how tough it is. Even with recovery it doesn't end. It impacts your life in one way or another every day (even 17 months out). If we can get through that and come out the other side still smiling then we can get through and do anything. I'll work out a way of nicely informing and educating people somewhere along the way. Either that or I'll lose the plot and not so nicely let people know (which I hope never happens although for some people it might not be a bad thing lol).

But thankyou. You all seem to know how to put my thoughts into perspective and help me to deal with everything we go through. Just by reading your responses I know now that I'm not the only one that deals with this and that helps immensely. Charm as always your post makes me smile. Just love your attitude.

Karen I had a friend who would disagree with you about me being positive so it's extremely nice to hear you say that. Because we had a difference of opinion about something she decided that instead of it being a good thing that I could think for myself and not follow the mob, that I was full of self pity and negativity because Steve had cancer (all this because I didn't say yes sharon, your right sharon). Needless to say she's now an EX friend and will remain that way.

Love you guys smile


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.