Kathie

It's always better to start your own thread so we can focus on you, but since this is your very first post, rest assured that you are hardly the only new member to add their question to an existing thread. Welcome to OCF, sorry you had to join.

I can avoid the PEG wars nonsense since with the exception of Christine all the posters who answered on this thread only had their PEGs for a very short time (IMO) so their posts aren't germane to your particular inquiry.

Now for the hard part: How do you cope with socializing if you can't eat or drink. My STs also refuse to give up and I spent several thousand dollars in co-pays doing a three times a week therapy including electrical stimulation for a year before failing my fourth barium swallowing test. Yet I go to Art receptions, school reunions, Thanksgiving dinners, and other social events regularly. I take my lovely wife out to nice romantic restaurants as well as casual dining.

Your sister sounds like she could do the same. IMO, the key is to get free of that damn pump or gravity bag and be able to use a syringe. But even if you can't, it's still doable. On a trip to Ashville NC, I just lugged my six foot pole and gravity bags to resturants as well as to hiking sites. My prescription medical food (Jevity 1.5) is very portable. I have a tiny little travel bag that holds three cans, two syringes, extension tubes, a cup and a napkin that I just sling across my shoulder and I'm good to go anywhere to party.

The key is focus in on the SOCIAL aspects. It's harder for me with the speech impediment, but you and your sister will be amazed at how quickly everyone gets used to her feeding tube. Life can be very good even if you can not eat or drink. I'm a living example. Read some of EricS' posts on attitude and accepting the life we lead now. Read Christine's posts. Share them with your sister. We all have gone on and your sister can also.
In the short term, here is a link on taking medications thru a PEG PEG meds

Finally, as the resident OCF contrarian, let me urge you to have your sister start putting a little wine down her PEG. I'm not saying get drunk, but if she drank before, the PEG lets her drink without any risk to her base of tongue or sensitive throat tissues. It's the one and only advantage of having a permanent PEG IMO.
Best wishes and please start a new thread with any more questions or if there is any way we can help you and your sister.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13