 "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Tom,
How long ago was the PEG put in? Its probably cinched pretty tight to your skin and should be loosened after a week. If I recall, its completely normal to have **stuff** back up into the tube - gross, huh? Also, are you flushing it with water every day? I believe you should be. Sneezing or coughing shouldn't cause the tube to blow-out or anything, but yea, it hurts like the dickens! As far as cramping, I don't think I experienced that one.
Hope this helps a little bit!
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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