 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I forgot to mention if you are using the feeding pump while you sleep, your bed needs to be elevated. I placed a couple thick phone books between the head of my mattress and box spring and sleep on 2 pillows.
It is very important to swallow water daily no matter how difficult it becomes. Keep eating as much as you are able and shoot for 3000 calories per day. It sounds like alot but your body will be burning calories like crazy fighting this awful disease.
A visiting nurse can be very helpful in teaching you how to use the peg tube. I had one come a few times during my first round of OC. It was so reassuring knowing I had a medical professional coming to my home to help me.
Best of luck with everything.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
