I'm so sorry that it's taken me this long to post that I am okay and he is out. I think I slept two hours all weekend.
The judge here was only interested in guilty or innocent pleas today so, Matt plead not guilty and was automatically given orders to stay 500 feet away from my son and I until his court date in February.
I was like SERIOUSLY????? Time is too precious to waste months AND no freaking way am I missing a doc appointment with him. I tried talking to the court clerk, she put me on hold for two seconds only to come back on the line saying that the judge didn't care that he had cancer, it stood as is.
I went to see a lawyer today who feels confident he can get the order lifted and my husband home so that I can get him help.
Penners - Its interesting that you mentioned the brain... its been a few weeks back that Matt told me his thinking had changed inside and he was shocked/afraid of some things going through his mind. He was afraid too that it may have met. to his brain already. The oncology team here seems to have him pigeonholed into "standard" occurances and have not really examined his brain. The last scan, believe it or not was merely a chest CT.
SO - Wednesday lawyer will talk to judge, in the mean time I will be setting up counselor for the family as a whole and individually. Further treatment for this wretched disease will commence likely at another facility that can better care for my husband as a whole and not just do s.o.p. and call it a day.
Much love and appreciation to all of you who are sometimes the only support I have to turn to in this crazy time.
Christine


CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.