This forum gets Googled sometimes, and this is one of them. I have for the first time used my ability to censor some of the posts on this forum. I have taken out proper names that might bring particular attention to this thread. We all know what the subject of the thread is at this point, so to us this shouldn't be a big thing other than I have crossed a line that I never have before in a decade.
Re; the people we are talking about; I would suggest that as we are all aware the media seldom gets the story right, but they want to get it out first, right or wrong. We all have very strong feelings about this subject of oral cancer, and about how our life companions journey with us. I would also suggest that what has been suggested by the media is not accurate on this point. That except for the first week the people have been together in this family as well. Some of us, me included, just don't like people around us when we are sick, and ask or drive them away while we get through what we have to get through. Since everyone is speculating here, let me speculate that this is common even among the famous, at least right in the beginning, when a media circus might be surrounding the situation.
If you will all forgive me the editing of proper names, I would appreciate it. Keep on expressing yourselves as you see fit, but please keep any proper names out of this particular thread. Google, Bing and others catalog more than we know sometimes. I am not doing anything because of all of you, but because of my situation, which I can not compromise right now. More, if we are going to say anything unkind, which may pass in any discussion, especially one in which we do not have all the facts, that there are no proper names associated with that, at least on this thread, on this board.
Last - the NCCN guidelines, especially at an institution that helps to set them, are for radiation and chemo to the base of tongue in cases where surgery might compromise long term quality of life issues for the patient. Speculating that someone might at a major institution force their doctors to use a treatment modality based on their personal vanity, is also believing that a doctor would actually do that, and that the media got the story right. Personally at a multidisciplinary treatment center I would speculate that could never pass muster with a group of doctors agreeing to it. This is a life and death issue, and no doctor is going to trade vanity for an opportunity at life. I also do not think that his person would choose that.
Just because the press says something doesn't mean that we can trust them to get it right especially when the story is something involving celebrity or other things that can sell papers and magazines.
