Update, they canceled the last Chemo. Said protocol is to do the 3rd one at the same time as Radiation. Since his blood counts were below 900, I guess they figured that it it moot now by the time his body builds back up for it. Now we are just struggling day to day with recovery. Still on oatmeal and egg salad in the morning with water and doing pretty well, the afternoon one is more painful but he still gets it down. We are still in a pain spiral after 6 even with the pain meds. Tonight is the worst, sore jaw, can barely talk, indigestion and a lot of pain. Is this normal? Mucus is still a huge problem, but still doing the meat tenderizer and it brings a lot of relief. Nights really suck right now.


Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!