Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Jeff if you ever find out how to deal with th fear Please let me know. Dr Ozer checked my tongue where it has been hurting so bad, into my neck and in the ear like the side where the OC was. He says it's possible that I have it again. Talk about fear. Man I have it but am trying to ignore it until I hear from him about fridays PetScan.I know what you fear and respect the fear . If I got it I got it and will do what's needed to cure it again. I was feeling like a whimp instead of some tough old ass . LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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