|   Patient Advocate (1000+ posts) 
 Joined:  Aug 2003 Posts: 1,627 |  Hi Jen,You're in the worst time right now.  I remember feeling SO dissapointed because I had expected to feel better as soon as treatment ended.  I hadn't found this message board yet so I had no idea what was normal and what wasn't.  All I knew was that after two weeks I still didn't have a voice, I still had an open area on my neck and I felt horrible.  I marked off on a calender, religiously, each and every radiation day, a big old X, waiting for the last day so life would pop back to normal.  Didn't happen that way.  After about three weeks to a month I started feeling improvement.  Eating was a slow process so have patience with it.  I gave into the "tube" and used it to my advantage.  It gave me the nutrition I needed to heal quicker.  Don't be to quick to get it taken out.
 I hope you turn that corner we all describe to you very soon.
 Minnie
   SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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