I appreciate your post, Danny. BTW, I previously sent you a private note, but it still shows as "unread by recipient." Did you read it? I was suggesting that you read this book: Racing to a Cure, by Neil Ruzik. In it, he talks about his own experience as well alot about the state of the art in cancer research.

I also asked Lynn to read this book a couple of weeks ago. She told me she was doing fine, that she would read the book...and now she's gone!

Friends, the state of the art in cancer research IS NOT surgery, chemo and radiation. These tried, though not always true methods have been the only thing offered to us for the last 30 years. Which is why the statistics haven't improved much in 30 years. And the unfortunate chances are that a lot of us are going to see a recurrence or a second primary. In the mean time, I beg you: Don't leave it in God's hands. Be proactive. Keep researching. Don't be lulled into the paradigm of thinking the "big three" treatment options are the only thing out there. Esspecially when they have failed. Look into things like monoclonal antibodies or anti-angiogensis agents like Celebrex. Then ask your doctors really hard questions about the state the art and what if. We, as patients and care-givers, need to be part of the driving force behind our care, not just passengers along for the ride. I don't want to read another post like Ed's about Lynn from last Friday.

I'm through ranting. Thanks for putting up with it...

-Brett


Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.