Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Your normal changes. You'll see me weep a bit here on the forums, because this is the only place I really can ... it's a good place for advice and sympathy. But in real life, I have to try to just keep moving forward. I've got a lot of new challenges, but there's still a lot I can do. I've been a Scout leader (Girls and Boys both) since my kids were little ... I still do that, just have to make a few more accommodations when we go camping. (And honestly, I think I'd have to do that anyway ... I was one of the few adults who didn't like taking along big mattress pads before; now I need one. LOL. That might just be age!) I adjust the menu for myself. But those are also good lessons for my youth, so we play it that way. And my co-leaders know there might be days where my energy just isn't there and they have to take over. (Since I'm generally ADD and high-energy, again, a break would be needed on occasion anyway ... just more now than it used to be.) That's some examples, anyway. Home is crazy, too, but who knows ... life changes and it could be that anyway. My family is great and the whole mess brought us closer together, so there's that. And I have a good therapist (had one before, started seeing him again) who helps me through the really rough times.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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