Your normal changes. You'll see me weep a bit here on the forums, because this is the only place I really can ... it's a good place for advice and sympathy. But in real life, I have to try to just keep moving forward. I've got a lot of new challenges, but there's still a lot I can do. I've been a Scout leader (Girls and Boys both) since my kids were little ... I still do that, just have to make a few more accommodations when we go camping. (And honestly, I think I'd have to do that anyway ... I was one of the few adults who didn't like taking along big mattress pads before; now I need one. LOL. That might just be age!) I adjust the menu for myself. But those are also good lessons for my youth, so we play it that way. And my co-leaders know there might be days where my energy just isn't there and they have to take over. (Since I'm generally ADD and high-energy, again, a break would be needed on occasion anyway ... just more now than it used to be.) That's some examples, anyway. Home is crazy, too, but who knows ... life changes and it could be that anyway. My family is great and the whole mess brought us closer together, so there's that. And I have a good therapist (had one before, started seeing him again) who helps me through the really rough times.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery