Is your surgery being done by a surgeon that treats head and neck cancer? Do you live near any cancer centers?


I am a little farther in my journey than you but our stories are similar. About mid-August, large lump on underside of my tongue that was painful, went through a lot trying to get a diagnosis and a biopsy. Biopsy came back squamous cell carcinoma of the tongue, just had surgery to remove it on October 1st, lost a fourth of my front tongue. Also had a left side neck dissection done. I'm home and healing and hopeful that my journey is over once I'm healed and learn how to use my new mouth.


Laura Age 40
Tongue lesion on left side grew and was hurting in mid-August
Dx as squamous cell carcinoma on 9.18.18
Left Neck Dissection and tongue surgery, lost a fourth of my tongue on 10.1.18, tumor had grown to a T3
Margins were clear except front section of tongue margin had three stray cancer cells that were not in the tumor
Additional surgery 10.18.18 to remove another cm near where the stray cells were found
33 radiation treatments from Nov 2018 through Jan 2019