That's funny Charm; the guys Kevin worked with wrote to him from the Great White North on a daily basis. Many of them even participated in payroll deduction to help us with our finances for the 6 months he was out of work. THEY were phenomenal...but they were HIS friends...
I was the caregiver and felt completely isolated. I would go to the school to pick up our youngest and in the beginning I would stand there feeling like a leper because everyone steered clear of me. One day I just broke down in tears and a complete stranger offered me a tissue and asked if she could help with something. I told her what we were going through and a great friendship was formed. It helped, but we only communicated at the school. The rest of the time I was alone again.
Then, toward the end of tx, I found my peace and support here. I NEVER felt alone again. I only wish I had found you 4 months sooner! But, better late than never!!
It has made me a much more compassionate person though. I am there when there's a need. I don't want anyone to feel the way I felt.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14