There are so mant good points here. One of the hardest things for me as a caregiver was that my expectations of some of the people closest to me had to be lowered considerably. And others I could never have imagined came through with much support.

During one particularly difficult period, when I was feeling isolated and emotionally drained, I reached out in an email to a colleague relaying what was going on in our lives. He in turn, bless his heart, notified our network of colleagues from a past work environment encouraging them to email me with messages of support. Wow! That was the most awesome thing. Sometimes people need a little coaching on how to help. Mike rallied the troops for me! To this day, remembering that gift makes me misty.

BTW, this was before I met my OCF friends. Once I started posting here, the response was amazing and so appreciated. There is nothing like this group of friends. I feel so lucky to be a part of it.



Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections