"Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | There are so mant good points here. One of the hardest things for me as a caregiver was that my expectations of some of the people closest to me had to be lowered considerably. And others I could never have imagined came through with much support.
During one particularly difficult period, when I was feeling isolated and emotionally drained, I reached out in an email to a colleague relaying what was going on in our lives. He in turn, bless his heart, notified our network of colleagues from a past work environment encouraging them to email me with messages of support. Wow! That was the most awesome thing. Sometimes people need a little coaching on how to help. Mike rallied the troops for me! To this day, remembering that gift makes me misty.
BTW, this was before I met my OCF friends. Once I started posting here, the response was amazing and so appreciated. There is nothing like this group of friends. I feel so lucky to be a part of it.
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
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