I dint use the right terms...OK, mom's tube became displaced..a Foley catheter was put in...that didn't work--tube is very small & a balloon is in her belly to block the hole so food doesn't come out. The ballon deflated...so, the ballon was filled again & a larger feeding tube was put in...fed her last week, 1/2 the feeding & waited 30 min..fed her the rest & rinsed tube. She's to lay on her right side now w/head elevated...thought it was all good...she stayed put for a while & I left...my sister came back for the next feeding...it had partially leaked...she gave mom the feeding & that stayed in....then late at night she got up w/terrible diahrea...and the feeding came out earlier that night, but she didn't call us. Next morning..took her back to the hospital & they admitted her...dehydration and the diahrea. Her fluid can cause that...but a couple of days later the hsptlist says no...it's the
Erbitux..for 8 wks no side effects like that from the chemo...so was it the Jevity or the
Erbitux. So much bloodwork has been done, waiting for the results. And still leakage around the tube. Anything in by mouth or tube, comes out. She CAN eat by mouth...the
HPV has gone wild in her mouth..
Erbitux did nothing....she wants NO more tube feedings or tube...wants her stomach then her belly sewed shut. The are of infection did clear up. I thinks God's making decisions for us that we couldn't or didn't know ho to make. Her mouth does not hurt....she's just so very tired & fragile. And disgusted with the tube that doesn't function. Dr felt it was a faulty ballon....he has never had the kind of problems mom's dealing with. He said it is so rare....He's not a really young person or inexperienced...so not a lot of answers. It is truly one day at a time...and even then....things can change. And Christine, don't know how you dealt with your deal w/ no caregiver....there are 3 of us...and all on the same page! God help all of us......Jane